When you are diagnosed with MS, there is no emotional support. When you have had a relapse, there is nothing either. You are told to ‘get on with it’ and similar phrases.
To which I say… ‘what?’
I was diagnosed at 23, which is young – I didn’t know who I was, where I wanted to be, or, at that point, what meaning I even attached to my life.
When I lost my legs, at 26, I went literally mental. I ended up in mental hospital.
I now have yearly episodes of psychosis – and unsurprisingly the delusions always centre around my health.
I wasn’t able to cope with my illness and I wish I had had more support. My health outcome would have been better.
Emotional support is necessary for people with MS. Spread the word.